Diabetes
in Kids and Teens
Resources for Families
Here you will find links to resources about care, services, support, and communicating online, websites, and electronic publications about diabetes in kids and teens.
Care, Services, and Support- Academy of Nutrition and Dietetics: Find a Registered Dietitian. Contact information for registered dietitians and registered dietetic
technicians who are ADA members. Search
by city, state, zip code, type of service,
and area of expertise, including diabetes and pediatric nutrition.
- American
Academy of Pediatrics (AAP) Pediatrician
Referral Service.
An online directory of pediatricians
who are AAP members. Search
by physician contact information
and medical specialty/interest,
including endocrinology.
- American
Association of Diabetes Educators (AADE):
Find a Diabetes Educator. Choose
a state from the map or enter a name,
city, state, or zip code to get contact
information
for a diabetes educator.
- American
Diabetes Association (ADA): National Call Center.
Contact the center with non-medical questions or
to seek support in English or Spanish on diabetes
and its management. Telephone: (800) 342-2383
(800-DIABETES).
E-mail: AskADA@diabetes.org (English) or Preguntas@diabetes.org
(Spanish). An instant message service is also available.
- Children
with Diabetes (CWD): Ask the Diabetes Team. E-mail health professionals with a question about diabetes.
- Diabetes
Education and Camping Association (DECA).
A directory of diabetes camps
in and outside the United States. DECA
members are camping and youth leaders
and health professionals who operate
diabetes camps and programs for kids
and teens.
- Family
Voices (FV). Family
Voices in Your State and Family
to Family Health Information
Centers (F2F HICs) help you find resources
and services to provide
and pay for health care
for your kids.
- Health Resources and
Services
Administration
(HRSA): Find a Health Center.
Search by address, city,
state, or zip code to find
a federally funded health
center that provides free
or low-cost care.
- Insure
Kids Now.
Links to each state’s
child and teen health insurance
program website. Available in
English and Spanish. Telephone:
(877) 543-7669 (KIDS-NOW).
- See the MCH Library’s Community
Services Locator: An Online Directory for Finding
Community Services for Children and Families.
- American
Diabetes Association (ADA): Family Link.
Connect with other families of kids with
diabetes through parent mentors, events,
and diabetes camps. ADA also offers message
boards where you can exchange ideas
and opinions on a variety of topics with
people affected
by diabetes. One board is for teens
and young adults with diabetes and another
is for parents of kids with diabetes.
- Children
with Diabetes (CWD): Family
Support Network. A database
of parents, kids, teens, adults,
family members, and friends willing to
exchange mail or e-mail about diabetes.
Also offers
a collection of online
forums for parents, grandparents,
kids, teens, and adults with diabetes.
Moderated chats are
also available for parents to
interact with one another about topics
concerning diabetes and kids.
- Friends'
Health Connection (FHC) Online
Community.
Join to find members with
diabetes to exchange
friendship and support. Includes
groups for
family members and caregivers.
Resources include message boards,
blogs, and online lectures.
- Joslin
Diabetes Center: Discussion
Boards.
Moderated forums for teens with diabetes and families of kids with
diabetes to find information and share thoughts and
experiences on specific diabetes issues.
- Juvenile
Diabetes Research Foundation (JDRF):
Juvenation.
A social network for people with type
1 diabetes who are at least 14 years
old. Create a profile,
participate
in online discussion groups and forums,
create and comment on blogs, and upload
videos about living with diabetes.
JDRF also offers Kids
Online Pen Pals, an online pen
pal service for kids and teens ages
4–18 with diabetes and
their families and friends.
- American
Association of Diabetes Educators (AADE):
Patient Resources. Self-care
videos and a self-care guide (available
in English and Spanish) for people with
diabetes. Includes a set of tips
for teens with diabetes.
- American
Diabetes Association (ADA): Diabetes
Information for Parents and Kids.
Information about
raising a kid with diabetes that includes
diabetes diagnosis, care, and complications;
challenges when a kid is at school;
parenting and family life; nutrition
and meal planning;
physical activity; and
legal rights.
Also offers a series of research
summaries about
diabetes in kids and teens; electronic
newsletters; and a companion Spanish-language website. See Planet
D for information and communication
opportunities for kids and teens
with diabetes.
- Children
with Diabetes (CWD).
Information for parents, kids,
and teens about all aspects of
diabetes care. Includes articles from
parents and stories by kids and teens
with diabetes and information
about diabetes-related events and camps.
- Flu.gov:
Diabetes and the Flu.
Guidelines for people with diabetes
who contract the flu. Use the Flu
Shot Locator to find out about flu vaccine availability
and where to get vaccinated.
- Joslin
Diabetes Center: Childhood Diabetes.
An online guide to information
about diabetes diagnosis and management
and communicating with your child about
diabetes care. Presents a glossary
of diabetes terms and contact information
for
Joslin treatment and education services
that include its JumpStart
Program for
kids newly diagnosed with diabetes. Publications include
books about managing diabetes, cookbooks,
and books by and for kids and teens
with diabetes.
- Juvenile
Diabetes Research Foundation (JDRF).
Information for families about all aspects
of type 1 diabetes. Publications include magazines for parents and kids, electronic
newsletters,
a blog, fact sheets, books written for
and by kids and teens about growing up
with
diabetes,
and
parenting guides. JDRF’s
Kids Online delivers
information and activities for kids,
and Life
with Diabetes for Teens posts
articles about living with the challenges
of diabetes.
- KidsHealth
Diabetes Center. Information in English
and Spanish for parents, teens,
and kids about living with diabetes
and managing and monitoring the
disease. Resources include a food
diary, a blood glucose record,
an online movie about the disease,
a diabetes dictionary, and recipes.
- MedlinePlus:
Diabetes. Links to
a wealth of information about diabetes in English,
Spanish, and several other languages. Also links to MedlinePlus guides on related topics, such as diabetes
complications, diabetes
medicines, and islet
cell transplantation.
- National
Diabetes Education Program (NDEP).
Resources for families and teens about diabetes
prevention and control. See Tips
for Kids: How to Lower Your Risk for Type 2 Diabetes. (2009).
Additional Electronic Publications
- Chase HP. 2006. Understanding
Diabetes (11th ed.).
Denver, CO: Children’s
Diabetes Foundation at Denver.
This handbook for people who are living
with diabetes encompasses the clinical
practices of the Barbara
Davis Center for Childhood Diabetes.
- Perez
G. 2006. Eagle
Books: Stories About Growing Strong and Preventing
Diabetes. Atlanta, GA: Centers
for Disease Control and Prevention (CDC). This series of four storybooks
and four coloring books presents information about type
2 diabetes prevention, physical activity, and
healthy eating among Native American kids. Animated
versions of the series and podcasts were developed in 2008. The materials, videos, and podcasts may
appeal to kids
and
parents
of all cultures. Also see Eagle
Books Series:
A Guide for Educators and Communities (2006). See too the Eagle’s
Nest, a website for kids about physical activity, healthy eating,
and ways to prevent or control diabetes.
Learn more about diabetes in kids and teens.
Need more information? Use the collection of resources that library staff have put together for you and your family.
Diabetes in Kids and Teens: Family Resource Brief. (August 2010). (Updated: February 2012).
Author: Susan Brune Lorenzo, M.L.S., MCH Library.
Reviewers: Olivia K. Pickett, M.A., M.L.S., MCH Library.
Editor: Ruth Barzel, M.A., MCH Library.
