Here are resources to find help and learn more about autism spectrum disorder (ASD).
Support for families
affected by autism during natural
disasters and other catastrophic
life events. Monetary
awards cover critical living expenses
(housing, utilities, car repair,
funerals, and other essential
items) on a case-by-case basis.
- Autism NOW: National Autism Resource
and Information Center: Local Agencies. Advocacy, direct services, family support, and resources for people with autism and other developmental disabilities and their families. Telephone: (855) 828-8476.
Source™. Community-based autism-related
services and supports, ranging from assistive technology
to camps to respite services. Telephone: (800) 3-AUTISM (328-8476).
Speaks. Telephone 9:00 a.m. to 1:00 p.m., Eastern Standard Time: (888) 288-4762;
(888) 772-9050 (en Español); E-mail firstname.lastname@example.org.
Services from early intervention to speech and language
Community Pages. Link to a local chapter.
Intervention Research Network on Physical Health (AIR-P):
Contact a Site.
Network of hospitals, physicians, researchers, and
families at 14 centers across the United States and
Canada working together to develop the most effective
approach to medical care for children and adolescents
- Family Voices (FV). Family
Voices in Your State and Family
to Family Health Information Centers (F2F HICs) help you find resources and services to provide and pay for health care for kids and teens with special needs.
- Parent Technical Assistance Center Network: Find a Parent Center in Your State. Contact information for centers that offer training and information to parents of kids, teens, and young adults with disabilities (emotional, learning, mental, and physical) to help parents participate more effectively with professionals in meeting their kids' educational needs. Separate centers serve military families and Native American families.
to Parent USA (P2P USA): Support.
Contact information for state parent-to-parent programs that provide
emotional support and information to families
of kids and teens with special needs, most notably by
matching parents who need support with
a trained and experienced parent who has shared the experience
of disability in the family.
offers technical assistance and
resources to parents interested
in building, improving, and evaluating
a parent-to-parent program.
Parent Magazine offers an annual
resource guide containing directories
of organizations, associations, products,
and services for families who have children with disabilities, including
To receive a free copy, call (800)
- See the Community
Services Locator: An Online Directory for Finding
Community Services for Children and Families.
- Autism NOW: National Autism
Resource and Information Center.
Resources and information for individuals with ASD and other developmental
disabilities and their families.
Topics: Benefits and services,
civil rights, community life, education,
employment, family and relationships, health, housing, recreation,
technology, and transportation.
Information about ASD
and its diagnosis, treatment
and education approaches, and
impact on family life. Includes family stories,
information about its research initiatives, and Spanish-language resources.
A wealth of information about autism symptoms, screening, diagnosis, treatment,
impact on family life, prevalence, and research. Offers a database
services, a resource library,
toolkits, a technology guide, a collection of
video clips about diagnosis and treatment, news, and
Includes resources for military families and materials
in languages other than English.
Topics: New diagnosis,
Asperger syndrome and high-functioning autism, treatments
and therapies, medication decision aid, medication safety,
managing anxiety while drawing blood, oral health
care, managing constipation,
toilet training, sleep, visual
supports, challenging behaviors, employment, family supports,
housing, Individualized Education
Program (IEP), advocacy, participating in autism drug
research, postsecondary educational opportunities,
school, haircuts, transition, safety, wandering, bullying,
and going out to eat.
Voices (FV). Resources in English and some in Spanish to help you make informed decisions for your kids and teens with special needs, advocate for improved public and private systems and services like Medicaid and the Children's Health Insurance Program (CHIP), and build partnerships with professionals.
Autism Network (IAN) Community. Information for parents of
a child newly diagnosed with ASD and articles about the challenges that
ASD and their families face, treatments and therapies,
and participating in and understanding
Topics: Challenging behaviors, therapies and treatments,
sleep, parenting, autism and Down syndrome, adolescence,
environmental factors, language delay, autism and epilepsy, transition,
genetics, research, and more.
the Signs. Act Early: Information for Families. Information
and tools to help you keep track of your child's development and
get help if you're concerned.
- National Autism
Association (NAA): Autism Safety Initiative. Information and
tools for families, first responders, health professionals, and school
personnel about wandering, restraint and seclusion, bullying, and suicide prevention.
- National Dissemination Center for Children with Disabilities (NICHCY). A wealth of resources on disabilities and disability-related issues. Materials are available in English and Spanish and address developmental milestones, specific disabilities, early intervention, the special-education process, and education and disability laws. (available through 9.30.14).
for Autism Research (OAR): Life Journey Through Autism Series. Guides to research, assessment, transition, assessment, and navigating the special-education system. Several guides are available in English and Spanish, and one addresses the needs of military families.
- Pathfinders for Autism.
Articles and tips about a new diagnosis, parenting, education, treatment and therapies, environmental modifications, safety, and social stories. Includes checklists by age that list the health, social, education, employment, housing, transportation,
financial, advocacy, assistive technology, and support services needed and resources to get started on finding them.
Learn more about autism spectrum disorder, screening, and early intervention and education.
Need more information? Use the collection of resources that library staff have put together for you and your family.
Autism Spectrum Disorder: Family Resource Brief, 2nd ed. (November 2013).
Author: Susan Brune Lorenzo, M.L.S., MCH Library.
Reviewer: Olivia K. Pickett, M.A., M.L.S., MCH Library.
Editor: Ruth Barzel, M.A., MCH Library.