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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Library.

Search For: Keyword: Thalassemia

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Displaying records 1 through 10 of 14 found.
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Providence Ambulatory Health Care Foundation. n.d.. HGB E, anemia and basic genetics. Providence, RI: Providence Ambulatory Health Care Foundation, 1 videotape (VHS 1/2 inch).

Annotation: This videotape provides information on hemoglobin E, anemia, and basic genetics. It describes how genes are inherited, and kinds of health problems different kinds of hemoglobin cause (anemia and thalassemia). It is supplemented by three pamphlets: Questions about thalassemia, Questions about hemoglobin E, and Genetics—The story of genes. The tapes and pamphlets are available in English, Laotian, and Cambodian. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 Fax: (202) 784-9777 E-mail: mchgroup@georgetown.edu Web Site: http://www.mchlibrary.org Available for loan.

Keywords: Anemia, Asian language materials, Audiovisual materials, Consumer education materials, Genetics, Thalassemia, Videotapes

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Pearson HA, Berman LC, Crocker AC (Eds.). 1997. Thalassemia intermedia: A Region I conference. Arlington, VA: National Center for Education in Maternal and Child Health, 52 pp.

Annotation: These proceedings are from a conference sponsored by the New England Thalassemia Program held in Boston on November 14, 1996. They define thalassemia intermedia, present data from patients, discuss research at the National Institutes of Health on the use of sodium phenylbutyrate and hydroxyurea to stimulate fetal hemoglobin, and analyze the molecular basis of the disease. Other presentations deal with the assessment of iron overload, the use of chelation therapy, splenectomy, and infection control. Finally, there is a panel discussion about treatment approaches. The proceedings are published as a special issue of The Genetic Resource (vol 11, no. 2). [Funded by the Maternal and Child Health Bureau]

Contact: New England Thalassemia Program, Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, Telephone: (617) 355-5943 Fax: (617) 355-7940 Available from the website. Document Number: ISBN 1-57285-041-8.

Keywords: Conference proceedings, Genetic disorders, Hematologic diseases, Thalassemia

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New England Regional Genetics Group. 1992. Thalassemia. Lowell, MA: Page One, 1 videotape (12:00 minutes English, other languages various times, VHS).

Annotation: This videotape is designed to tell Southeast Asian audiences about thalassemia before they have children. It shows children playing then a genetics counseling session with a young woman. It describes types of thalassemia, how it is inherited, how children are affected and treated, blood testing to determine if parents have the thalassemia trait, testing to see if an unborn infant has thalassemia, and choices parents can make about a pregnancy. The video is available in four versions, each with English plus a different Asian language (Hmong, Khmer, Lao, and Vietnamese). [Funded by the Maternal and Child Health Bureau]

Keywords: Asian language materials, Audiovisual materials, Consumer education materials, Genetics counseling, Thalassemia, Videotapes

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Berman LC, Crocker AC (Eds.). 1991. Thalassemia and Southeast Asians in New England: A regional conference. Washington, DC: National Center for Education in Maternal and Child Health, 61 pp.

Annotation: These proceedings include the presentations, discussions, and recommendations from a conference that brought together public health planners, health care providers, health educators, bilingual/bicultural human service workers, community and religious leaders, refugee service providers, and genetic counselors to explore in depth issues inherent in providing culturally sensitive and appropriate services to Southeast Asians at risk for thalassemia. Topics covered include Southeast Asian refugees in Massachusetts, testing for hemoglobinopathies in Southeast Asians, cultural perspective, hemoglobinopathy screen in an Asian health center, and Southeast Asian health center patient's knowledge and attitudes toward genetic services and thalassemia. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 Fax: (202) 784-9777 E-mail: mchgroup@georgetown.edu Web Site: http://www.mchlibrary.org Photocopy available at no charge. Document Number: HRSA Info. Ctr. MCHE050.

Keywords: Asian Americans, Child health, Culturally competent services, Thalassemia

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Association of Asian Pacific Community Health Organizations. 1990. Thalassemia among Asians. Oakland, CA: Association of Asian Pacific Community Health Organizations, 2 pp.

Annotation: This educational brochure discusses what thalassemia is, how you get it, who inherits it, alpha and beta thalassemia disease, thalassemia trait, screening tests, and important facts for consumers. It was funded by the Maternal and Child Health Bureau and Office of Minority Health. It is available in English, Chinese, Korean, Laotian, Samoan, Tagalog, and Vietnamese. [Funded by the Maternal and Child Health Bureau]

Keywords: Asian Americans, Asian language materials, Patient education materials, Thalassemia

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University of California, Irvine Medical Center, Southeast Asian Genetics Program. 1987. Thalassemia. Orange, CA: University of California, Irvine Medical Center, Southeast Asian Genetics Program, 1 videotape.

Annotation: This videotape gives an overview of thalassemia's symptoms, why a person gets it, and treatment. It describes how blood normally works, and thalassemia's inadequate red blood cells. Early detection and treatment can control its effects, such as decreased bone growth. Human development from conception, and the dominant/recessive gene pattern are explained. It describes the benefits of genetic testing of parents and prenatal testing, and the test for thalassemia in the child. The narration is stilted. [Funded by the Maternal and Child Health Bureau]

Contact: University of California, Irvine, Southeast Asian Genetics Program, Building 29A, Second Floor, 101 The City Drive, Orange, CA 92668, Telephone: (714) 634-6966 Price unknown.

Keywords: Asian Americans, Audiovisual materials, Patient education materials, Thalassemia, Videotapes

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National Center for Education in Maternal and Child Health. 1986. Cooley's anemia: A psychosocial directory. Washington, DC: National Center for Education in Maternal and Child Health, 56 pp.

Annotation: This publication describes types of resources available to patients with Cooley's anemia (thalassemia) and their families. It describes the disorder and the psychosocial needs of patients from infancy to young adulthood. Information is given about finding assistance in genetic services, self-help and advocacy groups, education, employment, financial assistance, medical assistance, transportation, civil rights/legal assistance, tax benefits and housing. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 Fax: (202) 784-9777 E-mail: mchgroup@georgetown.edu Web Site: http://www.mchlibrary.org Available for loan; also available from the ERIC Document Reproduction Service, 7420 Fullerton Road, Suite 110, Springfield, VA 22153-2852. Telephone: (800) 443-ERIC / e-mail: EDRS@inet.ed.gov / website: http://edrs.com/; gopher://edrs.com. Document Number: ERIC ED 296 494.

Keywords: Adolescent health, Child health, Thalassemia

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March of Dimes Birth Defects Foundation, Community Services Department. 1986. Thalassemia. White Plains, NY: March of Dimes Birth Defects Foundation, 2 pp. (Public health education information sheet, genetic series)

Annotation: This fact sheet briefly explains the different kinds of thalassemia, effects on children, treatment, transmission, detection before birth and research being done.

Contact: March of Dimes, 1275 Mamaroneck Avenue, White Plains, NY 10605, Telephone: (914) 997-4488 Secondary Telephone: E-mail: Web Site: http://www.marchofdimes.com Out of print; new edition available from source listed. Document Number: HRSA Info. Ctr. MCHB164.

Keywords: Genetic disorders, Hematologic diseases, Thalassemia

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Crocker AC (Ed.). 1985. Thalassemia in southeast Asian refugees: Public health planning aspects. Boston, MA: Children's Hospital, Developmental Evaluation Clinic, 55 pp.

Annotation: This report originated from discussions held at a conference, "The Public Health Planning Aspects of Thalassemia in Americans of Asian Background," which took place in Irvine, California on April 30, 1984. The conference was supported by the Division of Maternal and Child Health. This report summarizes the group's considerations and resolutions. In some areas materials from individual conferees are also provided. A bibliography is included.

Keywords: Asian Americans, Programs, Refugees, Thalassemia

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Lin-Fu JS. 1981. Cooley's anemia: A medical review. Rockville, MD: U.S. Department of Health and Human Services, Bureau of Community Health Services, 50 pp.

Annotation: This publication reviews the current knowledge of Cooley's anemia (beta thalassemia).

Contact: Maternal and Child Health Library at Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 Fax: (202) 784-9777 E-mail: mchgroup@georgetown.edu Web Site: http://www.mchlibrary.org Available for loan. Document Number: DHHS (HSA) 81-5125.

Keywords: Thalassemia

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