Platt A, Sacerdote A. 2002. Hope and destiny: The patient's and parent's guide to sickle cell disease and sickle cell trait. Roscoe, IL: Hilton Publishing, 260 pp.
Annotation: This book, written for the general public, discusses sickle cell disease and trait; it is based on questions patients, parents, and others have asked the staff of the Georgia Comprehensive Sickle Cell Center at Grady Health Center in Atlanta, Georgia. Part one of the book, entitled the ABCs of sickle cell disease, contains background information on blood, genetics, genetic counseling, raising children with the disease, sickle cell trait, and medical care. Part two discusses developmental issues in stages: birth to six years of age; 6-12 years; 13-18 years; 19-25 years; 26-40 years; and adults over 40. The third part focuses on living with sickle cell disease and topics in pain assessment and management; new treatments and research; what the patient can do; and provides resources. Two appendices include information on the history of sickle cell disease and its distribution, and a bibliography. The book concludes with an index.
Contact: Hilton Publishing, 1630 45th Street, Suite 103, Munster, IN 46321, Telephone: 219-922-4868 Secondary Telephone: 866-455-1070 Fax: 219-922-6407 E-mail: firstname.lastname@example.org Web Site: http://www.hiltonpub.com $16.95, plus shipping and handling. Document Number: ISBN 0-9675258-4-5.
Keywords: Blacks, Blood and lymphatic diseases, Chronic pain, Developmental stages, Genetic counseling, Genetic screening, Hematologic disorders, Patient education materials, Sickle cell disease, Sickle cell trait, Therapeutics