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Infant Mortality
Knowledge Path

May 2006 (Updated July 2007)

Table of Contents

General Resources

Special Topics

Please provide feedback on this knowledge path.

General Resources

Introduction

This knowledge path about infant mortality has been compiled by the Maternal and Child Health Library at Georgetown University. It offers a selection of recent, high-quality resources that analyze data, describe public health campaigns and other prevention programs, and report on research aimed at identifying causes and promising intervention strategies. This knowledge path for health professionals, policymakers, researchers, and families will be updated periodically.

Related topics: Please see our knowledge paths about
preconception and pregnancy, locating community-based services to support children and families, children and adolescents with special health care needs, and racial and ethnic disparities in health.

Overview

  • See the Department of Health and Human Services' fact sheet, Preventing infant mortality, rev. ed. (2006), which describes the problem of infant mortality in the United States and federal efforts to reduce mortality risks.

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Hotline

  • First Candle/SIDS Alliance. Provides a nationwide, 24-hour, toll-free hotline in English and Spanish for expectant and new parents on ways to help their infants survive and thrive, for parents who have experienced the death of an infant, and for professionals working with families. The hotline telephone number is (800) 221-7437.

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Web Sites: A-Z

Additional Electronic Publications

Databases

The databases listed below are excellent tools for identifying data, additional literature and research, and programs addressing infant mortality. Many of the entries below contain tips on how to use the databases efficiently. Please note that databases vary in how terms should be entered; for example, some require quotation marks and others don't. Enter search phrases as shown in bold below.

Data
  • Child Trends DataBank. Reports on national trends and research on over 80 key indicators of infant, child, and adolescent well-being. Child Trends is a nonprofit, nonpartisan research organization providing research and data to inform decision-making that affects families. Recent analyses about infant mortality include

    Infant, child, and youth death rates. (2006).

    Infant homicide. (2007).

  • Data2010: The Healthy People 2010 Database. Contains the most recent monitoring data for tracking Healthy People 2010. To obtain data about infant mortality and contributing factors, click on the field, Data by Focus Area. Under the field, Select a Focus Area, choose 16 - Maternal, Infant, and Child Health from the pop-up menu. Next, click on the button for Include Related Objectives From Other Focus Areas in the Table. Click on the Submit button. This data set is provided by the National Center for Health Statistics (NCHS) via CDC Wonder.

  • Health Data for All Ages. Presents interactive online data tables on pregnancy and birth, health conditions and risk factors, health care access and use, and mortality. Infant, neonatal, and postneonatal mortality data are presented by cause, age, gender, race/Hispanic origin, geographic region, state, and territory, and for the United States overall. This data warehouse is a service of the National Center for Health Statistics (NCHS).

  • KIDS COUNT. Contains information about this national and state-by-state effort to track the status of children in the United States. Access the annual KIDS COUNT data book online to generate custom graphs, maps, ranked lists, and state-by-state profiles of infant mortality, among other child health indicators. Also access Right Start Online, which contains national and state-by-state data reflecting conditions before birth, a newborn's health status at birth, and maternal characteristics that are associated with a child's educational and social outcomes. KIDS COUNT is a project of the Annie E. Casey Foundation (AECF).

  • Linked Birth/Infant Death Data Set. Contains data about infant births/deaths for children under age 1, occurring within the United States to U.S. residents. Counts can be obtained by state, county, child's age, weight, cause of death, maternal race, maternal age, maternal education, gestation period, prenatal care, live birth order, and marital status. This data set is provided by the National Center for Health Statistics (NCHS) via CDC Wonder.

  • National Quality Measures Clearinghouse™ (NQMC). Contains evidence-based health care quality measures and measure sets for physicians, hospitals, and health plans to evaluate and improve the quality of health care for consumers. Search for measures that target a particular disease/condition (e.g., infant mortality), treatment/intervention, age range, vulnerable population, setting of care, or contributing organization. The database is sponsored by the Agency for Healthcare Research and Quality (AHRQ).

  • PeriStats. Provides access to maternal and infant health-related data at the national, state, county, and city level by aggregating data from 11 government agencies and organizations. Topics include the timing and frequency of prenatal care, preterm birth, infant mortality, tobacco use, and health insurance coverage. Over 60,000 graphs, maps, and tables are available, and data are referenced to the relevant source. PeriStats is a service of the March of Dimes.

  • State Health Facts Online. Contains state-level data on demographics, health, and health policy, including health coverage, access, financing, and state legislation. Information is displayed as bar graphs, tables, or color-coded maps. View individual state profiles or compare data for all states by category. For infant mortality-related data, click on the Health Status category and select one of several subcategories under Infants. This system is provided by the Henry J. Kaiser Family Foundation.

  • Title V Information System (TVIS). Contains data from annual Title V Block Grant applications and reports submitted by all 59 U.S. states and jurisdictions. To identify state efforts to reduce infant mortality, conduct several searches: (1) Select Program Data for the Most Recent Year; scroll to Medicaid/Non Medicaid Comparison and select Infants deaths per 1,000 live births. (2) Select Measurement and Indicator Data; select National Outcome Measures; and select a state and infant mortality measure. (3) Select Measurement and Indicator Data; scroll to State Data; select State Priority Needs Keyword Search; and select Keyword: Morbidity/Mortality and Population: Infants. (4) Select Measurement and Indicator Data; scroll to State Data; select State Outcome Measures; and select Keyword: Morbidity/Mortality and Population: Infants. (5) View State Snapshots of Maternal and Child Health for a summary of each state's infant mortality data. TVIS is a service of the Maternal and Child Health Bureau (MCHB).
Literature and Research
  • Cochrane Database of Systematic Reviews. Presents systematic reviews of health care interventions internationally. Type "infant mortality" for a list of review abstracts that can be browsed by title. Access to the full-text article requires a subscription. The database is published by the Cochrane Collaboration, an international nonprofit organization based in the United Kingdom.

  • Database of Abstracts of Reviews of Effects (DARE). Contains summaries of systematic reviews that have met strict quality criteria. To be included, reviews must be about the effects of interventions. Each summary also provides a critical commentary on the quality of the review. Search the database by typing "infant mortality" OR "sudden infant death syndrome" in the search box. Click on Search to get your results. DARE is produced and maintained by the Centre for Reviews and Dissemination at the University of York.

  • HP2010 Information Access Project: Maternal, Infant and Child Health. Provides an automatic search mechanism for published literature indexed in PubMed related to the Healthy People 2010 maternal and child health (MCH) objectives that include reducing fetal and infant deaths. Also links to the narrative for this objective and the complete chapter about MCH in the text, Healthy People 2010: Understanding and improving health, 2nd ed. (2000). This service is provided by the Partners in Information Access for the Public Health Workforce, a collaboration of federal agencies, public health organizations, and health sciences libraries.

  • Maternal and Child Health Library at the National Center for Education in Maternal and Child Health (NCEMCH), Georgetown University. Maintains several databases to collect, manage, and disseminate knowledge about MCH, with special emphasis on knowledge gained from initiatives and programs supported by the Maternal and Child Health Bureau (MCHB). The library's bibliographic databases are

    Healthy Start Collection Database. Comprises an online catalog of over 2,000 items developed by Healthy Start sites, including brochures, bylaws, curricula, marketing materials, policies, and national evaluation reports along with other material related to maternal and infant health. Materials are classified according to the nine Healthy Start models of intervention that range from community-based consortia to risk prevention and reduction.

    MCHLine®. Comprises an online catalog of materials in the Maternal and Child Health Library. A selection of recent library items are listed in the bibliography, Infant mortality.

    The Maternal and Child Health Library also offers organizations and programs databases.

  • National Guideline Clearinghouse (NGC). Contains evidence-based clinical practice guidelines and related materials for health professionals. Identify guidelines by entering "infant mortality" OR "sudden infant death syndrome" in the Search field. The database is an initiative of the Agency for Healthcare Research and Quality (AHRQ).

  • National Sudden Infant Death Resource Center (NSIDRC): Topics A-Z. Offers links to electronic resources collected from national, state, and local SIDS/Infant Death programs, as well as perinatal, stillbirth, maternal and child health, and bereavement organizations. The resources include fact sheets, brochures, booklets, posters, order forms, and electronic materials in CD/DVD/video format (including foreign-language materials).

  • Native Health Database. Contains citations for health-related articles, reports, surveys, and other documents about the health and health care of American Indians, Alaska Natives, and Canadian First Nations. To identify citations on the topic, enter infant mortality OR sudden infant death syndrome. The database is sponsored by the Indian Health Service (IHS) and the University of New Mexico Health Sciences Library and Informatics Center.

  • PubMed. Contains over 17 million citations for biomedical articles that date back to the 1950s. These citations are from MEDLINE and additional life sciences journals. PubMed includes links to many sites providing full-text articles and other related resources. To identify citations on the topic, enter the search phrase infant mortality OR sudden infant death syndrome. Then, click on Limits and make the following selections on the page: select a date (e.g. Published in the last 2 years); click on Humans; click on Languages: English; and select Tag Terms: MeSH Major Topic. Selecting Type of Article further limits the search. PubMed is a service of the National Library of Medicine (NLM).
Programs

Electronic Newsletters and Online Discussion Groups

Special Topics

Birth Defects

  • MedlinePlus: Birth Defects. Offers a select list of authoritative health information sources about birth defects for health professionals and families. The list is available in English and Spanish. Includes a link to an automatic search in MEDLINE/PubMed for recent research articles on birth defects. MedlinePlus is a service of the Natio