Infant
Mortality
Knowledge Path
May 2006 (Updated July 2007)
Table
of Contents |
General
Resources
Special Topics
Please provide feedback on
this knowledge path. |
General Resources
Introduction
This knowledge path about
infant mortality has been compiled by
the Maternal
and Child Health Library at
Georgetown University. It offers a selection
of recent, high-quality resources that
analyze data, describe public health
campaigns and other prevention programs,
and report on research aimed at identifying
causes and promising intervention strategies.
This knowledge path for health professionals,
policymakers, researchers, and families
will be updated periodically.
Related topics: Please see our knowledge
paths about preconception
and pregnancy, locating
community-based services to support children
and families, children
and adolescents with special health care
needs, and racial
and ethnic disparities in health.
Overview
- See the Department
of Health and Human Services' fact
sheet, Preventing
infant mortality, rev. ed. (2006),
which describes the problem of infant
mortality in the United States and
federal efforts to reduce mortality
risks.

Hotline
- First
Candle/SIDS Alliance.
Provides a nationwide, 24-hour,
toll-free hotline in English and
Spanish for expectant and new parents
on ways to help their infants survive
and thrive, for parents who have
experienced the death of an infant,
and for professionals working with
families. The hotline telephone
number is (800) 221-7437.

Web Sites: A-Z
- American
Academy of Pediatrics (AAP).
Contains policy statements, journal
articles, fact sheets, and other
materials about infant mortality
and risk-reduction programs. Recent
resources and initiatives include
Changing
concept of sudden infant death
syndrome: Diagnostic coding
shifts, controversies regarding
the sleeping environment, and
new variables to consider in
reducing risk.
(2005). [Position statement].
Healthy
Child Care America Back to Sleep
Campaign.
Contains brochures for parents
and child care providers and training
and education materials for health
professionals about reducing the
incidence of sudden infant death
syndrome (SIDS) in child care settings.
AAP is a partner in this campaign,
which is part of the broader Back
to Sleep Campaign sponsored
by the National
Institute of Child Health and Human
Development (NICHD).
Recent materials include
- Association
of Maternal and Child Health Programs
(AMCHP): State Infant Mortality
Initiative (SIMI).
Offers information and resources
about this program to help state
public health agencies investigate
their increasing, stagnant, or
high infant mortality rates. Recent
publications include
Building
state partnerships to improve
birth outcomes: AMCHP perinatal
disparities action learning
lab report.
(2005).
- Association
of SIDS and Infant Mortality Programs
(ASIP).
Offers information about this association
of health and human service providers
committed to infant mortality bereavement
support and risk-reduction activities.
Resources include a list of state
SIDS contacts and SIDS materials
for families and health professionals. Publications include
Bereavement
counseling for Sudden Infant
Death Syndrome (SIDS) and infant
mortality: Core competencies
for the health care professional.
(2004).
Case
study of faith-based outreach in
New York City: Lessons learned
from a risk reduction initiative.
Final report.
(2004).
Also see the National
SIDS & Infant Death Project
IMPACT,
a partnership between ASIP and
the Maternal
and Child Health Bureau (MCHB).
- Centers
for Disease Control and Prevention
(CDC).
Offers resources and initiatives
aimed at reducing infant mortality
that include
CDC's Division
of Reproductive Health: Maternal
and Infant Health.
Contains links to reports, data,
and other resources about promoting
infant health and preventing
infant illness and mortality,
including SIDS
and other sudden, unexplained
infant death (SUID).
Recent publications and initiatives
include
- Racial/ethnic
disparities in infant mortality
-- United States, 1995-2002.
(2005).
- Sudden,
Unexplained Infant Death Initiative
(SUIDI).
Presents information about this
initiative to improve the investigation
and reporting of SUID, in collaboration
with other federal agencies and
organizations representing medical
examiners, coroners, death-scene
investigators, emergency medical
personnel, law-enforcement officials,
forensic nurses, SIDS researchers,
infant-death-review experts,
and parents who have experienced
a death of an infant. Includes
the SUIDI
reporting form (2006)
for state and local use in infant-death-scene
investigations.
CDC's National
Center for Health Statistics (NCHS).
Includes national data about infant
mortality and contributing factors.
Recent publications include
CDC's Racial
and Ethnic Approaches to Community
Health (REACH 2010).
Describes this initiative that
supports community coalitions in
designing, implementing, and evaluating
community-driven strategies to
eliminate health disparities in
six priority areas, one of which
is infant mortality.
Also see CDC's National
Center on Birth Defects and Developmental
Disabilities (NCBDDD).
- CityMatCH.
Contains tools and resources for implementing
the Perinatal Periods of Risk (PPOR)
approach for mobilizing communities
to reduce feto-infant mortality in
U.S. cities. PPOR is a joint initiative
of CityMatCH and the Centers
for Disease Control and Prevention
(CDC), March
of Dimes (MOD),
and Maternal
and Child Health Bureau (MCHB).
- CJ
Foundation for SIDS.
Includes program information and
educational materials to reduce
the incidence of SIDS. Recent materials
include
Face
up to wake up.
(2005). This 12" x 18" poster
depicts four ways to reinforce
safe sleep practices and reduce
the incidence of SIDS in child
care. The poster is available
in English and Spanish and can
be downloaded or ordered free
of charge.
- First
Candle/SIDS Alliance.
Contains information about its
efforts to eliminate SIDS, stillbirth,
and other causes of infant mortality
through research and education
while supporting bereaved families.
Resources include a series of fact
sheets for expectant and new parents
about reducing the risk of infant
death; education and training materials
for health and human service professionals;
and a training manual and fact
sheets for child care providers.
Resources for bereaved families
include a hotline,
grief packets, referrals to local
support groups, conferences, and
online resources to help families
connect and share experiences.
Spanish-language materials for
families and professionals are
also available. This national nonprofit
organization seeks to unite families,
caregivers, health professionals,
and researchers with government,
business, and community-service
groups to eliminate infant mortality
and support bereaved families.
Recent publications and initiatives
include
Bedtime
Basics: An Infant Sleep Campaign.
Presents information and materials
for this educational outreach
campaign to help prevent infant
deaths caused by unsafe sleep
practices.
Model
Program: The Most Important Modeling
Job of Your Life.
Presents information and materials
for this national professional
education campaign that urges nurses
in neonatal intensive care units
and well-baby nurseries to incorporate
safe sleep policies into their
existing protocols.
SIDS
and infant death program manual
and trainer's guide.
(2006).
- Healthy
People 2010.
Offers information about this national
health promotion and disease prevention
initiative created by a broad coalition
of experts from many sectors to
improve the health of all Americans,
eliminate disparities in health,
and improve years and quality of
healthy life. The initiative addresses
467 objectives in 28 focus areas
that include 22 measurable health
objectives specific to risk factors
for infant mortality and more than
100 related objectives on issues
such as cigarette smoking. Healthy
People 2010 contains background
information on the initiative;
the complete text (online and searchable), Healthy
People 2010: Understanding and
improving health, 2nd ed. (2000); data;
a list of the Healthy People partners
and related sites; and other Healthy
People publications.
It is coordinated by the Office
of Disease Prevention and Health
Promotion (ODPHP).
Also see the HP2010
Information Access Project for
access to published literature
related to the Healthy People 2010
objectives about reducing fetal
and infant deaths.
- March
of Dimes (MOD).
Contains resources for health professionals
and consumers in English and Spanish
about preconceptional and prenatal
care, birth defects, bereavement,
and how to get involved in improving
the health of infants by reducing
the incidence of birth defects
and infant mortality. Also offers perinatal
statistics (including
infant mortality rates), perinatal
nursing education modules, and
medical reference information.
- MedlinePlus:
Sudden infant death syndrome.
Offers a select list of authoritative
health information sources about
SIDS for health professionals and
families. The list is available
in English and Spanish. Includes
a link to an automatic search in
MEDLINE for recent articles on
SIDS. Also view the MedlinePlus
list of health
topics for
links to related resources about
pregnancy, pregnancy
loss,
infant and early childhood health,
and birth
defects.
MedlinePlus is developed by the National
Library of Medicine (NLM).
- National
Center for Cultural Competence
(NCCC).
Includes information about its Sudden
Infant Death Syndrome (SIDS)/Other
Infant Death (ID) Project,
a set of promising practices for
cultural and linguistic competence
in addressing SIDS/ID, a literature
review, a self-assessment checklist,
and links to related resources
about cultural competence and infant
mortality. Information is available
in English and Spanish. NCCC is
a part of the Georgetown
University Center for Child and
Human Development.
Publications include
Building
integrated systems to address
sudden unexpected infant death.
(2007).
- National
Fetal and Infant Mortality Review
Program (NFIMR).
Contains a wealth of resources
for implementing the fetal and
infant mortality review (FIMR)
method, including a directory of
state and community FIMR projects,
bibliographies, descriptions of
model programs, reports, a newsletter,
and an online
discussion group.
NFIMR is a partnership between
the American
College of Obstetricians and Gynecologists
(ACOG) and
the Maternal
and Child Health Bureau (MCHB).
Publications include
Cross
cultural expressions of grief
and loss: When an infant dies,
Vol 2.
(2004).
Maternal
risk factors related to fetal and
infant mortality, rev. ed.
(2005).
[Bibliography].
Thinking
creatively: What FIMR team members
need to know to foster community
buy-in.
(2005).
- National
Healthy Start Association (NHSA).
Describes the Healthy Start program
and provides general information
about infant mortality, low birthweight
infants, and racial disparities
in perinatal outcomes. Includes
a directory of Healthy Start programs
nationwide and a newsletter.
Funded by the Maternal
and Child Health Bureau (MCHB),
Healthy Start provides community-based,
culturally competent, family-centered,
comprehensive perinatal health
services to women, infants, and
their families in communities with
very high rates of infant mortality.
(Also see the Maternal and Child
Health Library's Healthy
Start Collection Database for
a catalog of materials developed
by Healthy Start programs.)
- National
Institute of Child Health and Human
Development (NICHD).
Contains research and grant information,
publications, and other resources
for health professionals, researchers,
and consumers about pregnancy and
infant and child health topics,
including infant mortality and
related factors. NICHD is part
of the National
Institutes of Health (NIH).
Initiatives include
Back
to Sleep Campaign.
Contains information about this
national campaign aimed at health
professionals, child care providers,
and families to promote placing
infants to sleep on their backs
to reduce the risk of SIDS.
Includes research reports, outreach
materials in English and Spanish,
and videotapes. The campaign
is sponsored by NICHD, the Maternal
and Child Health Bureau (MCHB),
the American
Academy of Pediatrics (AAP), First
Candle/SIDS Alliance,
and the Association
of SIDS and Infant Mortality
Programs (ASIP).
Recent resources include
- National
MCH Center for Child Death Review.
Describes the child death review
process for children ages 0-18;
offers tools for child death review
teams; and presents child mortality
data by state, causes of child
death, and prevention strategies.
The national center is funded by
the Maternal
and Child Health Bureau (MCHB).
Recent resources include
Child
death review: Using data to
understand why children die
and taking action to prevent
child deaths.
(2006). [Internet audio
conference].
Guides
for effective child death reviews.
(2005).
- National
Resource Center for Health and
Safety in Child Care (NRC).
Presents each state's child care licensure
regulations that
includes those involving safe sleep
environments for infants. Also
offers Sudden
infant death syndrome risk reduction
standards,
a compilation of the 10 national
standards on reducing the risk
of SIDS in child care settings
based on the manual, Caring
for our children: National health
and safety performance standards
-- Guidelines for out-of-home child
care, 2nd ed. (2002).
- National
SIDS & Infant Death Project
IMPACT.
Offers contact information for
state SIDS programs, links to state
SIDS laws, and links to state child
care licensing about safe sleep
environments. Also offers information
about innovative resource development
projects conducted by state SIDS/ID
programs and a listserv to
support state and local infant
mortality and risk reduction programs.
Includes facts about SIDS and practices
to help lower the risk of SIDS.
Also includes links to research
on the causes of sudden unexpected
infant death. Project IMPACT, a
partnership between the Association
of SIDS and Infant Mortality Programs
(ASIP) and
the Maternal
and Child Health Bureau (MCHB),
creates opportunities for collaboration
among federal, state, and local
organizations in response to SIDS/ID
risk reduction and bereavement
support issues. Resources include
two tool cards for health professionals
developed with the Association
of Clinicians for the Underserved:
Bereavement
support for the family suffering
the death of an infant.
(2006).
Infant
death risk reduction.
(2006).
- National
Sudden Infant Death Resource Center
(NSIDRC).
Includes many resources for health
professionals, policymakers, and
families about SIDS and other unexpected
infant death, stillbirth, miscarriage,
and bereavement. Resources include
fact sheets, booklets, bibliographies,
Spanish-language materials, and
a bibliographic
database.
NSIDRC is sponsored by the Maternal
and Child Health Bureau (MCHB).
Recent publications include
After
sudden infant death: Facing anniversaries,
holidays, and special events.
(2005).
Death
of a child the grief of the parents:
A lifetime journey, rev. ed.
(2005).
Directory
of SIDS state program coordinators.
(2005).
Helping
children cope with grief when an infant
dies. (2005).
Safe
sleep for your baby around the clock:
Birth to 12 months.
(2005).
Selected
resources for grieving parents, their
families, friends, and other caregivers.
(2005).
SIDS
deaths by race and ethnicity,1995-2001.
(2004).
Sudden,
unexpected infant death: Information
for the emergency medical technician.
(2004).
Responding
to a sudden, unexpected infant death:
The professional's role.
(2004).
Table
of SIDS death and mortality rates,
1983-2003.
(2005).
What
is SIDS?, rev. ed.
(2005). A Spanish-language version, ¿Qué
es el SMIS?, rev. ed.
(2005) is also available.
- Office
of Minority Health: Infant Mortality/SIDS.
Contains statistics about infant
mortality among racial and ethnic
groups. Also presents a fact sheet
about infant mortality and a list
of links to publications and Web
sites on the topic. Initiatives
include
A
Healthy Baby Begins With You.
Describes this national education
campaign to raise awareness
about infant mortality with
an emphasis on the African American
community.

Additional
Electronic Publications
- Aizer A, Lleras-Muney
A, Stabile M. 2004. Access
to care, provider choice, and racial
disparities in infant mortality.
Cambridge, MA: National
Bureau of Economic Research.
This paper explores the issue of whether
consumer choice of health professionals
explains any of the differences in
birth outcomes between children born
to poor parents in the United States
and those born to non-poor parents,
and, if it does, why poor women choose
different health professionals than
their non-poor counterparts.
- Association
of State and Territorial Health Officials
(ASTHO).
2006. Bringing
home better birth outcomes.
Washington, DC: Association of State
and Territorial Health Officials
(ASTHO). This issue brief examines
home visiting as a strategy employed
by state health agencies to deliver
public health interventions aimed
at improving birth outcomes. This
brief is written in follow-up to
ASTHO's Strides
among state health agencies to improve
birth outcomes: A compendium of programs (2005).
- Behrman
RE, Stith Butler A, eds., and Board
on Health Sciences Policy, Committee
on Understanding Premature Birth and
Assuring Healthy Outcomes. 2007. Preterm
birth: Causes, consequences, and prevention.
Washington, DC: National
Academies Press.
This books assesses the problem of
preterm birth in the United States
with respect to both its causes and
outcomes, including higher mortality
and morbidy rates. It addresses the
need for research involving clinical,
basic, behavioral, and social science
disciplines.
- Currie J, Neidell M.
2003. Air
pollution and infant health: What can
we learn from California's recent experience.
Cambridge, MA: National
Bureau of Economic Research.
This paper examines the impact of air
pollution on infant death in California
in the 1990s.
- Department
of Health and Human Services (DHHS).
2006. Preventing
infant mortality, rev. ed.
Washington, DC: Department of Health
and Human Services. This fact sheet
describes the problem of infant mortality
in the United States and DHHS's efforts
to reduce mortality risks.
- Infant Mortality Task
Force. 2005. Reducing
infant mortality in Delaware: The task
force report.
Dover, DE: Delaware
Department of Health and Social Services.
This report focuses on infant mortality
in Delaware and presents 20 recommendations
to reduce infant mortality rates.
- National
Conference of State Legislatures
(NCSL).
2007. 50
states summary of sudden infant death
syndrome (SIDS) laws, rev. ed. Washington,
DC: National Conference of State
Legislatures. This compilation lists
states with laws related to SIDS
and offers a brief description of
each law with links to more detailed
information.
- O'Neill C. 2004. Healthy
babies: Efforts to improve birth
outcomes and reduce high risk births.
Washington, DC: National
Governors Association Center for
Best Practices.
This report describes efforts --
including reducing infant mortality
-- that states can make to improve
birth outcomes.
- UNICEF.
2006. The
state of the world's children, 2006.
New York, NY: UNICEF. Table
1: Basic indicators contains
infant mortality rate comparisons by
country.

Databases
The databases listed below
are excellent tools for identifying data,
additional literature
and research,
and programs addressing
infant mortality. Many of the entries
below contain tips on how to use the
databases efficiently. Please note that
databases vary in how terms should be
entered; for example, some require quotation
marks and others don't. Enter search
phrases as shown in bold below.
- Data
- Literature
and Research
- Cochrane
Database of Systematic Reviews.
Presents systematic reviews of
health care interventions internationally.
Type "infant mortality" for
a list of review abstracts that
can be browsed by title. Access
to the full-text article requires
a subscription. The database is
published by the Cochrane
Collaboration,
an international nonprofit organization
based in the United Kingdom.
- Database
of Abstracts of Reviews of Effects
(DARE).
Contains summaries of systematic
reviews that have met strict quality
criteria. To be included, reviews
must be about the effects of interventions.
Each summary also provides a critical
commentary on the quality of the
review. Search the database by
typing "infant mortality" OR "sudden
infant death syndrome" in the
search box. Click on Search to
get your results. DARE is produced
and maintained by the Centre
for Reviews and Dissemination at
the University of York.
- HP2010
Information Access Project: Maternal,
Infant and Child Health.
Provides an automatic search mechanism
for published literature indexed
in PubMed related
to the Healthy
People 2010 maternal
and child health (MCH) objectives
that include reducing fetal and
infant deaths. Also links to the
narrative for this objective and
the complete chapter about MCH
in the text, Healthy
People 2010: Understanding and
improving health, 2nd ed. (2000).
This service is provided by the Partners
in Information Access for the Public
Health Workforce,
a collaboration of federal agencies,
public health organizations, and
health sciences libraries.
- Maternal
and Child Health Library at
the National
Center for Education in Maternal
and Child Health (NCEMCH),
Georgetown University. Maintains
several databases to collect, manage,
and disseminate knowledge about
MCH, with special emphasis on knowledge
gained from initiatives and programs
supported by the Maternal
and Child Health Bureau (MCHB).
The library's bibliographic databases
are
Healthy
Start Collection Database.
Comprises an online catalog
of over 2,000 items developed
by Healthy Start sites, including
brochures, bylaws, curricula,
marketing materials, policies,
and national evaluation reports
along with other material related
to maternal and infant health.
Materials are classified according
to the nine Healthy Start models
of intervention that range from
community-based consortia to
risk prevention and reduction.
MCHLine®.
Comprises an online catalog of materials
in the Maternal and Child Health
Library. A selection of recent library
items are listed in the bibliography, Infant
mortality.
The Maternal and Child
Health Library also offers organizations
and programs databases.
- National
Guideline Clearinghouse (NGC).
Contains evidence-based clinical
practice guidelines and related
materials for health professionals.
Identify guidelines by entering "infant
mortality" OR
"sudden infant death syndrome" in
the Search field. The database is
an initiative of the Agency
for Healthcare Research and Quality
(AHRQ).
- National
Sudden Infant Death Resource Center
(NSIDRC): Topics A-Z.
Offers links to electronic resources
collected from national, state,
and local SIDS/Infant Death programs,
as well as perinatal, stillbirth,
maternal and child health, and
bereavement organizations. The
resources include fact sheets,
brochures, booklets, posters, order
forms, and electronic materials
in CD/DVD/video format (including
foreign-language materials).
- Native
Health Database.
Contains citations for health-related
articles, reports, surveys, and
other documents about the health
and health care of American Indians,
Alaska Natives, and Canadian First
Nations. To identify citations
on the topic, enter infant mortality
OR sudden infant death syndrome.
The database is sponsored by the Indian
Health Service (IHS) and
the University
of New Mexico Health Sciences Library
and Informatics Center.
- PubMed.
Contains over 17 million citations
for biomedical articles that date back
to the 1950s. These citations are from
MEDLINE and additional life sciences
journals. PubMed includes links to
many sites providing full-text articles
and other related resources. To identify
citations on the topic, enter the search
phrase infant mortality OR sudden
infant death syndrome. Then, click
on Limits and make the following selections
on the page: select a date (e.g. Published
in the last 2 years); click on Humans;
click on Languages: English; and select
Tag Terms: MeSH Major Topic. Selecting
Type of Article further limits the
search. PubMed is a service of the National
Library of Medicine (NLM).
- Programs
- Bureau
of Primary Health Care (BPHC) Service
Delivery Sites.
Offers contact information for
community health centers that provide
free or low-cost care to underserved
populations. The database is searchable
by geographic area, clinic name,
and type of service provided, including
obstetrical care, primary care,
and mental health services. BPHC
is part of the Health
Resources and Services Administration
(HRSA).
- Maternal
and Child Health Library at
the National
Center for Education in Maternal
and Child Health (NCEMCH),
Georgetown University. Maintains
two databases to identify organizations
and programs that address infant
mortality:
MCH
Organizations Database.
Lists over 2,000 government,
professional, and voluntary
organizations involved in MCH
activities, primarily at a national
level. Organizations focusing
on infant mortality prevention
appear in a list produced
from the database.
MCH
Projects Database.
Comprises an online catalog of
projects funded by MCHB. To identify
projects that focus on the topic,
enter "infant mortality" in
the simple search field of the
database search
form and
click on status: active. Several final
reports from
these projects are available online
and include recent Healthy Start
impact reports.
- National
Association of County and City
Health Officials (NACCHO): Model
Practice Database.
Contains information about model
state and local public health programs.
Search by state or health topic.
For effective programs to address
infant mortality, select Maternal
and Child Health under the section,
Community Health.
- Promising
Practices Network (PPN) on Children,
Families and Communities: Programs
That Work.
Features descriptions of evaluated
programs that improve outcomes
for children. Identify programs,
including those that address infant
mortality, by searching on topic
area, evidence level, or alphabetically.
PPN is operated by the RAND Corporation.

Electronic
Newsletters and Online Discussion Groups
- Consumer
Product Safety Commission (CPSC)
Subscription List System.
Offers several electronic alert
services for consumer product recalls
and safety news, including those
products used in homes and communities
that are potentially hazardous
for infants.
- Getting
Off to a Healthy Start.
This newsletter, published quarterly
by the National
Healthy Start Association (NHSA),
informs Healthy Start staff and
others in the MCH community about
successful community-based approaches
to reducing infant mortality and
improving perinatal outcomes. The
newsletter also highlights research
and evaluation findings, legislative
activities, and conference announcements.
- NFIMR
List Service.
Administered by the National
Fetal and Infant Mortality Review
Program (NFIMR),
this online discussion group aims
to encourage an information exchange
among FIMR programs and individuals
interested in infant mortality
reviews.
- State-to-State
SIDS and Infant Death Listserv.
This electronic discussion group
focuses on SIDS and other causes
of infant death to help support
state and local infant mortality
and risk reduction programs. The
discussion group features monthly
updates on research, program development,
policy and legislative issues,
conferences, and funding opportunities,
and it provides a forum for sharing
successful outreach and education
strategies. National
SIDS & Infant Death Project
IMPACT moderates
this electronic discussion group.

Special Topics
Birth
Defects
- MedlinePlus:
Birth Defects.
Offers a select list of authoritative
health information sources about
birth defects for health professionals
and families. The list is available
in English and Spanish. Includes
a link to an automatic search in
MEDLINE/PubMed for recent research
articles on birth defects. MedlinePlus
is a service of the Natio
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